Wood of Thorns

I have never been called a ‘Beauty’ but my chronic illness put up a barrier between me and the world every bit as tangled and high as Briar Rose’s thorn hedge. Being struck with M.E. really can feel like being ‘cursed' – one day I was enjoying a perfectly normal life, the next poof! it vanished. Even after nine years, trying to manage and learn about my condition often feels like trying to hack my way through a tangled, thorny mess. And of course...I do sleep a lot

Saturday, 14 August 2010

DANCING WITH THE SANDMAN: UK Blood Services Set to Ban ME/CFS Sufferers from Donating on a Lifetime Basis

DANCING WITH THE SANDMAN: UK Blood Services Set to Ban ME/CFS Sufferers from Donating on a Lifetime Basis

In a letter to Andrea, the Dept of Health have described ME very clearly and plainly as a 'relapsing condition'. Since mental disorders cannot cause relapsing, remitting conditions, may we hope the treatment of ME will now be 'brought in line with' the treatment of other relapsing conditions such as MS in areas of our health service other than criteria for blood donation? And in our Benefits system too?