tag:blogger.com,1999:blog-3320942169453653507.comments2012-06-18T22:31:14.775+02:00Wood of Thornsslothgothhttp://www.blogger.com/profile/01847029827542675513noreply@blogger.comBlogger56125tag:blogger.com,1999:blog-3320942169453653507.post-16805856872346300512012-06-18T22:31:14.775+02:002012-06-18T22:31:14.775+02:00So sorry to hear you had a horrid time at the fest...So sorry to hear you had a horrid time at the festival. That sounds so grim.Badwitchhttps://www.blogger.com/profile/10548605170878666546noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-26007597056726819092012-03-22T11:44:19.529+01:002012-03-22T11:44:19.529+01:00Thanks for posting.Thanks for posting.Lucyahttps://www.blogger.com/profile/05429257604555715534noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-65343200982877695222010-09-07T14:44:15.890+02:002010-09-07T14:44:15.890+02:00It is. But it does make one feel very odd when su...It is. But it does make one feel very odd when such bad news is good news (if you see what I mean).slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-52242350932214744832010-09-07T11:55:32.154+02:002010-09-07T11:55:32.154+02:00That's good news!That's good news!Badwitchhttps://www.blogger.com/profile/10548605170878666546noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-73591709092706205782010-09-03T18:11:00.336+02:002010-09-03T18:11:00.336+02:00I sympathise. I went to working part time because ...I sympathise. I went to working part time because I care for my disabled elderly mum and even people who have seen me pushing her around in a wheelchair say "How lovely to work part time, it must be great to have so much time to do what you want - or do you get bored?" They don't seem to realise that being a carer is a 24-hours-a-day, seven-days-a-week, 365-days-a-year job in itself!Badwitchhttps://www.blogger.com/profile/10548605170878666546noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-45385198397847023092010-08-17T08:35:04.223+02:002010-08-17T08:35:04.223+02:00Huh. So even people with a bona fide mental illnes...Huh. So even people with a bona fide mental illness don't find CBT helpful. Interesting.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-13383614803821369112010-08-16T12:44:03.230+02:002010-08-16T12:44:03.230+02:00We can but hope...We can but hope...Lou Louhttps://www.blogger.com/profile/04843090156991545421noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-42410265906425431402010-08-14T13:05:31.499+02:002010-08-14T13:05:31.499+02:00I have some mild dizziness issues - enough to prev...I have some mild dizziness issues - enough to prevent me driving (if I hadn't already stopped due to arm pain and weakness, that is). I'm going to be very careful how fast I move the chair, turn it, etc. I wonder if greater support would help with the blood pressure issue for your friend, though am not certain. Will see what I can find out for you. *heads off to consult the guys on the slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-79117228006387312032010-08-11T07:00:09.548+02:002010-08-11T07:00:09.548+02:00Sounds like a very positive step.
Do you deal at ...Sounds like a very positive step.<br /><br />Do you deal at all with orthostatic intolerance or MCS? I know somebody who'd like to explore the wheelchair route, but he wouldn't be able to sit upright for long enough to be able to use a standard chair. He'd also need something that wouldn't outgas toxic chemicals.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-51517452298804690132010-08-10T14:50:24.489+02:002010-08-10T14:50:24.489+02:00Yay on the wheelchair!! Hope it makes you much mor...Yay on the wheelchair!! Hope it makes you much more mobile. I wish I'd been wise and humble enough to turn to a wheelchair sooner, as I think it would have allowed me to be more active for a longer time, and perhaps have prevented me from getting quite as sick as I have (I kept pushing to try to walk). Enjoy the freedom your chair brings you!!!Laurelhttps://www.blogger.com/profile/01688914443102913569noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-64156627500830952062010-08-10T12:04:56.788+02:002010-08-10T12:04:56.788+02:00Heh, I haven't got them and can't see them...Heh, I haven't got them and can't see them in my spam folder. Poke him! (Gently!). Hope the camping was good?slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-76656179926095655922010-08-10T11:43:50.898+02:002010-08-10T11:43:50.898+02:00Thanks for sharing a good article on this post top...Thanks for sharing a good article on this post topic. I read all comments. Thanks for all valuable comments int his blog. Keep blogging.<br /><br /><br /><a href="http://devilandgod.com" rel="nofollow">news</a>Unknownhttps://www.blogger.com/profile/13884134026129112157noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-22455214478478458722010-08-09T19:48:18.328+02:002010-08-09T19:48:18.328+02:00Yes, we must meet up! BTW thanks for your kind off...Yes, we must meet up! BTW thanks for your kind offer of testing a pdf on your Kindle for us. JD has some RPG rulebooks he bought as pdfs and I think he has some concerns about whether the Kindle will cope with the graphics. Has he emailed them to you? I've been away camping for a week and I've been a bit out of touch. (I pre-posted blogs before I went)Badwitchhttps://www.blogger.com/profile/10548605170878666546noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-3857322916462141262010-08-09T18:13:59.174+02:002010-08-09T18:13:59.174+02:00Ouch, he's really going through it poor lad. B...Ouch, he's really going through it poor lad. Back injuries are no bloody fun. Please give him a (gentle) hug from me. We'll have to meet up with our combined wheels and feet sometime!slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-87090431378356560002010-08-09T17:30:03.957+02:002010-08-09T17:30:03.957+02:00Wheelchairs are fine. I even sometimes push JD aro...Wheelchairs are fine. I even sometimes push JD around in mum's wheelchair when his back is bad (as he still hasn't recovered from the slipped disc he got last November).Badwitchhttps://www.blogger.com/profile/10548605170878666546noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-40110935367041595042010-07-29T09:50:06.278+02:002010-07-29T09:50:06.278+02:00VeeVee, welcome and big hugs back :) You're ...VeeVee, welcome and big hugs back :) You're right - I'm very lucky that we are in a financial position where we can get along without me applying for any state benefits. We decided that since we could manage (not luxuriously, but not starving) without, I wouldn't devote a large amount of precious energy to a process that would undoubtedly make me sicker. To be able to make that slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-79464734039621763092010-07-29T06:33:06.878+02:002010-07-29T06:33:06.878+02:00I actually gasped out loud when I read what your G...I actually gasped out loud when I read what your GP had said about surgeries being for sick people. I thought I had it bad. I now have 2 GP's (bit complicated) but one doesn't believe ME exists.... BUT, he would never EVER speak to me like that so I still see him because regardles of the diagnosis given by my other GP, he still treats me for my symptoms in assumption they are all under VeeVee "Vicki" B.https://www.blogger.com/profile/10084303290525067159noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-4191259381867371272010-07-11T16:12:47.190+02:002010-07-11T16:12:47.190+02:00Fingers crossed!!Fingers crossed!!Laurelhttps://www.blogger.com/profile/01688914443102913569noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-18943927656517467162010-07-11T09:06:00.233+02:002010-07-11T09:06:00.233+02:00Long, but worth it. Very quotable. Thanks.Long, but worth it. Very quotable. Thanks.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-51044691550269474492010-07-10T08:29:34.264+02:002010-07-10T08:29:34.264+02:00Yeah, I just loved the part about GET to help pati...Yeah, I just loved the part about GET to help patients with their FEEEEELINGS about being tired.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-5710366832730827002010-07-09T21:59:28.351+02:002010-07-09T21:59:28.351+02:00According to posts on Phoenix Rising today
http:/...According to posts on Phoenix Rising today<br /><br />http://www.forums.aboutmecfs.org/showthread.php?6221-FDA-NIH-Paper-will-be-published<br /><br />FDA/NIH Paper will be published<br />The CAA posted this morning. it will be out "within weeks." The PNAS editor is on vacation, so I couldn't get a comment from him for CFS Central.<br /><br />Mindy Kitei<br />CFS Central<br />http://slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-41821116152438199472010-07-09T20:58:25.135+02:002010-07-09T20:58:25.135+02:00Did you hear that they are now publishing the FDA/...Did you hear that they are now publishing the FDA/NIH study - they have done some additional tests as requested but the results are still the same.Lou Louhttps://www.blogger.com/profile/04843090156991545421noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-5200871897947571332010-07-09T14:37:04.183+02:002010-07-09T14:37:04.183+02:00Passing on a friend's comment:
'if you ha...Passing on a friend's comment:<br /><br />'if you haven't used "Their so-called "research" is a poorly-disguised trivialisation of a severe, multi-dimensional disorder" - I think it's a nice phrase.'slothgothhttps://www.blogger.com/profile/01847029827542675513noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-61484725056255144482010-07-05T20:56:28.893+02:002010-07-05T20:56:28.893+02:00Given what happened last week, it looks like you h...Given what happened last week, it looks like you had good reason to worry... *Sigh.*Laurelhttps://www.blogger.com/profile/01688914443102913569noreply@blogger.comtag:blogger.com,1999:blog-3320942169453653507.post-622069566297234942010-06-30T09:38:40.755+02:002010-06-30T09:38:40.755+02:00You've probably heard the latest by now, about...You've probably heard the latest by now, about both the NIH and CDC studies being held (<a href="http://online.wsj.com/article/SB10001424052748703374104575337160225739290.html" rel="nofollow">online.wsj.com/article/SB10001424052748703374104575337160225739290.html</a>).<br /><br />I'm grateful to whoever leaked the NIH findings. Just think how easy it would be for the government to squelchcinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.com